A story of patient driven research

Josh Sommer - The story of CF Labs

Dr. Jean-Paul Wolinsky and Dr. Victor Arrieata (Northwestern)

Frankie Codero, chordoma survivor

Dr. Vinai Gondi (Northwestern proton center)

Toni Neff, chordoma patient

Panel discussion - Chordoma Community Day Chicago

Dr. Sam Shahpar (Shirley Ryan AbilityLab)

Dani Pike, chordoma survivor/Chordoma Foundation

Lived experience - Bill Monahan - chordoma surivivor

Make an impact and go forward with hope - Dani Pike

Lived experience - Alyssa Lee - chordoma patient

A story of patient driven research

Navigating a rare cancer diagnosis: Lessons from Kathy Giusti's book, “Fatal to Fearless”

AMA with Josh Sommer and Shannon Lozinsky

AMA with Josh Sommer and Shannon Lozinsky

How Chordoma Foundation Labs is accelerating progress and bringing hope to patients

Zoom-Cafe Germany with Prof. Beate Timmermann

Nutrition in chordoma care

Dealing with pain

Closing: Kaitlin Slepian

Managing mobile spine and sacral side effects

Advocating for your care

Managing clival and upper cervical spine side effects

The path to cures: research updates, CF Labs, Natural History Study