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216 видео
State of the art treatment - Medical oncology
Options for comprehensive pain management | 2021 Virtual Chordoma Community Conference
What types of radiation are used to treat chordoma, and how do they differ?
Dani Pike, chordoma survivor/Chordoma Foundation
Dr. Sam Shahpar (Shirley Ryan AbilityLab)
Frankie Codero, chordoma survivor
Josh Sommer - The story of CF Labs
Navigating a rare cancer diagnosis: Lessons from Kathy Giusti's book, “Fatal to Fearless”
Dr. Vinai Gondi (Northwestern proton center)
Zoom-Cafe Germany with Prof. Beate Timmermann
Make an impact and go forward with hope - Dani Pike
Toni Neff, chordoma patient
AMA with Josh Sommer and Shannon Lozinsky
Dealing with pain
Closing: Kaitlin Slepian
Nutrition in chordoma care
The path to cures: research updates, CF Labs, Natural History Study
How Chordoma Foundation Labs is accelerating progress and bringing hope to patients
Dr. Jean-Paul Wolinsky and Dr. Victor Arrieata (Northwestern)
Managing clival and upper cervical spine side effects
Managing mobile spine and sacral side effects
Panel discussion - Chordoma Community Day Chicago
Lived experience - Alyssa Lee - chordoma patient
A story of patient driven research
Lived experience - Bill Monahan - chordoma surivivor
Advocating for your care
